What’s going on?

I am a 56 year old woman living with secondary cancer. I was diagnosed with Inflammatory Breast Cancer in March 2012, that rarest and most aggressive of breast cancers. Often mis-diagnosed, it presents itself with redness and swelling, a change in the consistency of the breast rather than a single lump. My GP examined me and said it was not cancer but offered me the opportunity to have it checked out at the breast clinic. Fortunately I took this up and so we knew what we were handling with quite early on. My treatment regime was tough – 3 sessions of FEC, 3 of Docetaxel, a radical mastectomy with full node clearance and 25 fractions of radiotherapy together with a further 3 sessions of Docetaxel and a year of Herceptin. Despite Professor Palmieri’s best efforts, I was diagnosed with secondary cancer in the lungs in June 2014.

I am on the fourth chemotherapy since diagnosis and it seems to show some effects. A positive CT scan which showed a reduction in lesions was tempered by a prognosis of 12 to 18 months, a lot less than I was hoping for.

At the point of the secondary diagnosis, my husband, Mark, and I decided to carry out an ambition we have held for some years and that was to move to Lincolnshire and have a quieter, more rural life. Despite the shock and incredulity of my oncology team, we managed it and moved from West London to a small village in Lincolnshire in March 2015.

I am lucky enough to have Mark, who I have known since 1978 and who has stood by me through each medical crisis. I also have 2 adult children – Francesca, who is a practising Birth Doula in Bangkok where she lives with her husband and Oliver, who lives in London and does something important and complicated with computers. They have all been solidly behind me providing love, support, hugs and inappropriate jokes. I love them enormously and dread the day we will all be parted.

Since January 2016, we have my mother-in-law living with us after my wonderful father-in-law died. She has dementia, is very deaf but so far refuses hearing aids and has turned our world upside down. We are just starting to come to terms with what we are dealing with and some of it ain’t pretty. So please forgive the swearing, complaining and insensitivity. Life has just changed beyond what we expected – yet again.

As for this, this is my blog. It’s about living with secondary cancer and all that entails. Please read and I hope you will find it interesting and helpful or at least, entertaining. All the bad jokes are mine.

Shelley x

2 thoughts on “What’s going on?

  1. Hello Shelley, I stumbled across your blog and I’m so glad I did! Your writing, it’s humour and honesty, is delightful and poignant and captivating . It feels as though I’m sitting, having a cup of tea and a chat with you (wine if you prefer!). I want to wish you well with your treatment and look forward to reading more of your blog. Emma xx

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